From: #Deathbedlive: the end-of-life trajectory, reflected in a cancer patient’s tweets
Modifiable dimension of patient experience | Number of tweets | Examples of tweets |
---|---|---|
Physical symptoms | 270 | “I am having a temporary nephrostomy this morning... With a view to then getting the radiotherapy done then performing a stent exchange” – 15 June 2016 |
Psychological and cognitive symptoms | 213 | “I’m not sure I can do this.” – 3 April 2016 |
Social relationships and support | 85 | “Everybody being so lovely both in public & behind the scenes on Twitter. Thank you so much. Love our virtual family very much” – 8 May 2016 |
Economic demands and care giving needs | 85 | “After seeing my lovely palliative care nurse this a.m. we’ve decided hospice admission for symptom control best course of action.” – 8 July 2016 |
Hopes and expectations | 51 | “Perhaps I should just accept #deathbedlive is closer than I hoped it was & get my final preparations finished.” - 29 March 2016 |
Spiritual and existential beliefs | 7 | “A comfortable night, just one would be so appreciated if anyone is listening. Running on empty and a nonstop few days coming up.” – 3 March 2016 |