Table 2 The content of the questionnaires and the different time points
From: The family talk intervention in palliative care: a study protocol
Children, 6–7 years | Children, 8–12 years | Adolescents 13–19 years | Well adult/partner | Ill parent | |||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
B | F1 | F2 | B | F1 | F2 | B | F1 | F2 | B | F1 | F2 | B | F1 | F2 | |
Study specific questions: | |||||||||||||||
-Background characteristics | X | X | X | X | X | ||||||||||
-Knowledge about the illness | X | X | X | X | X | X | X | X | X | X | X | X | X | X | X |
-Communication within the family | X | X | X | X | X | X | X | X | X | X | X | X | X | X | X |
Standardized questionnaires: | |||||||||||||||
-Psychosocial well-being (PedsQL) | X | X | X | X | X | X | X | X | X | ||||||
-Anxiety (GAD-7) | X | X | X | X | X | X | |||||||||
If intervention: | |||||||||||||||
Study-specific questions: | |||||||||||||||
-Expectations and goals with participation | X | X | X | X | |||||||||||
-Feasibility | X | X | X | X | |||||||||||
If bereaved: | |||||||||||||||
Study-specific questions: | |||||||||||||||
-The parent’s/partner’s death | X | X | X | X | |||||||||||
Standardized questionnaires: | |||||||||||||||
-Grief (PG-13) | X | X | X | X | |||||||||||