Table 2 Characteristics of participants and their children
From: Bereaved parents’ experiences of research participation
Direct follow up | Child’s name | Child’s age | Cause of death | Illness type | Time since death |
|---|---|---|---|---|---|
Layla | Lucas | Infant | Neurological injury | Chronic | 7 months |
Daniel | Olivia | Teenager | Metabolic condition | Chronic | 8 months |
Lucy | William | Toddler | Septic shock | Acute | 1 year, 1 month |
Alice | James | Toddler | Accident | Acute | 1 year, 2 months |
Emma | Charlotte | Infant | Sudden Infant Death Syndrome | Acute | 1 year, 4 months |
Evelyn | Henry | Infant | Congenital heart disease | Chronic | 1 year, 6 months |
Jasmine | Mason | Infant | Metabolic condition/Liver failure | Acute | 1 year, 6 months |
Zara | Noah | Teenager | Multi-organ dysfunction | Acute | 1 year, 8 months |
Abigail | Amelia | Infant | Congenital heart disease | Chronic | 1 year, 10 months |
Sarah & Connor | Sophie | Infant | Sudden Infant Death Syndrome | Acute | 2 years |
Isabelle | Ava | Teenager | Cardiac arrest | Acute | 2 years, 10 month |
Vicki & Nate | Emily | Infant | Sudden Infant Death Syndrome | Acute | 2 years, 10 month |
Piper & Edward | Ethan | Teenager | Neurological injury | Chronic | 3 years |
Charlie | Liam | Infant | Liver failure | Acute | 3 years |
Erin | Ruby | Toddler | Congenital heart disease | Chronic | 3 years, 6 months |
Eva | Thomas | Teenager | Anaphylaxis | Acute | 3 years, 8 months |
Comments relayed by spouse | |||||
Hannah | Olivia | Teenager | Metabolic condition | Chronic | 8 months |
Hudson | William | Toddler | Septic shock | Acute | 1 year, 1 month |
Joshua | Henry | Infant | Congenital heart disease | Chronic | 1 year, 6 months |
Ryan | Noah | Teenager | Multi-organ dysfunction | Acute | 1 year, 8 months |
Zoe | Liam | Infant | Liver failure | Acute | 3 years |
Lost to follow up | |||||
Jessica | Ella | Infant | Congenital heart disease | Chronic | 2 years, 6 months |
Imogen | Chloe | Toddler | Multi-organ dysfunction / Septic shock | Acute | 4 years |