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Table 2 Characteristics of study participants (n = 41)

From: Profiles of family caregivers of patients at the end of life at home: a Q-methodological study into family caregiver’ support needs

 

n (%)

Sex (female)

35 (85.4)

Age [range 26–81] (M, SD)

61.1 (±12.5)

Educational level (primary, secondary, tertiary)

5 (12.2)/ 12 (29.3)/ 24 (58.5)

Cultural background

 Dutch (native)

31 (75.6)

 Non-Dutch (Western)

6 (14.6)

 Non-Dutch (non-Western)

4 (9.8)

Has provided family care in the past

26 (63.7)

Currently provides family care

15 (36.3)

Provides/provided care for

 Partner

20 (48.8)

 Parent

16 (39)

 Other

5 (12.2)

Type of illness

 Cancer

16 (39)

 Dementia

16 (39)

 Organ failure

13 (31.7)

 Stroke (CVA)

5 (12.2)

 Other a

8 (19.5)

Contact frequency with care recipient

 Lives in same house

23 (56.1)

 Daily contact

16 (39)

 Weekly contact

2 (4.9)

Received support from

 Own network

28 (68.3)

 Home-care staff

30 (73.2)

 Volunteers

6 (14.6)

 Other b

5 (12.2)

 No support

2 (4.9)

Paid work when family care started (yes)

23 (56.1)

Work hours per week [range 10–66] (M, SD)

32.2 (±12.7)

Adjusted work situation because of family care (yes) c

14 (60.9)

 Quit job

10 (43.5)

 Work adjustments d

7 (30.4)

 Care/sick leave

4 (17.4)

  1. Note: a Other diseases or problems that were mentioned included progressive neurologic disorder, prolapse, dehydration, urinary infection, delirium, open wounds, multiple falling accidents and posttraumatic stress disorder (war trauma). b Other support included dementia support groups, case managers and privately paid caregivers. c Percentage of working family caregivers. d Work adjustments included reduced working hours, flexible working hours and working from home