From: Family experiences with palliative care for children at home: a systematic literature review
Criteria for inclusion | • Children (0–18) receiving palliative care at home • Papers in English or a Scandinavian language • Papers from January 2000 to January 2018 • Families’ and family members’ experiences of palliative home care (qualitative or quantitative, interviews or questionnaires) • Children with a life-limiting or life-shortening condition • Qualitative, quantitative and mixed methods design |
Criteria for exclusion | • Palliative care in people > 18 • Studies including both adult and children palliative care • Papers concerning research on symptoms and symptom management collected from medical records or from health care professionals • Nursing homes • Review papers • Book chapters • Conference abstracts • Citations without an abstract • Case reports • Papers evaluating a palliative care programme or therapy, but not based on the experience of families of children with LL or LT conditions |