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Table 1 Criteria for inclusion and exclusion

From: Family experiences with palliative care for children at home: a systematic literature review

Criteria for inclusion

• Children (0–18) receiving palliative care at home

• Papers in English or a Scandinavian language

• Papers from January 2000 to January 2018

• Families’ and family members’ experiences of palliative home care (qualitative or quantitative, interviews or questionnaires)

• Children with a life-limiting or life-shortening condition

• Qualitative, quantitative and mixed methods design

Criteria for exclusion

• Palliative care in people > 18

• Studies including both adult and children palliative care

• Papers concerning research on symptoms and symptom management collected from medical records or from health care professionals

• Nursing homes

• Review papers

• Book chapters

• Conference abstracts

• Citations without an abstract

• Case reports

• Papers evaluating a palliative care programme or therapy, but not based on the experience of families of children with LL or LT conditions