Table 3 analysis of the family experiences when children receive palliative care at home
From: Family experiences with palliative care for children at home: a systematic literature review
Categories | Text concerning home-based palliative care – the experiences of parents, children and siblings | Text concerning challenges and unmet needs at home | ||||
|---|---|---|---|---|---|---|
Themes | Parents’ experiences | Children’s experiences | Siblings’ experiences | Challenges | Needs | Importance of support and respite care |
Sub-themes | Place of care. Positive consequences of home care. | Wanted to stay at home. Physician showed interest in their person. Need for information without parents presence. | Difficult emotions. Home care made a normal life possible. | Importance of support. Lack of competence and organizations. Lack of privacy. Lack of trust but also satisfaction with health care providers. Work and economy | Communication with health care professionals. Heavily workload. Fighting for resources. | Respite care impotent for parents to cope. Pediatric palliative care teams. |