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Table 1 Eight-step implementation strategy

From: Advancing pediatric palliative care in a low-middle income country: an implementation study, a challenging but not impossible task

Strategies

Objective

Setting

Deliverable

Education

Inform healthcare providers, families, health care professionals in order to raise awareness

Hospitalization, emergency, PICU, NICU, CCU

Educational discussion meetings, conferences for caregivers, patients, and families.

Institutional Support

To establish collaborative support between board directors/decision-makers and PPC program leader

Board of directors

Education committee

Management committee

Reports and meetings that showed the enhancement of humanized care, improvement in patient experience and healthcare personnel experience, health outcomes, and finally resource optimization.

Academic Support

To educate HCW in PPC and its impact in the healthcare services

All HCW from hospitalization, PICU, NICU, CCU, BMTU

Meetings

Conferences

Workshops

Educational material

Advocacy With Other Actors In The Health System

To promote PPC with healthcare authorities, scientific societies, the academic community, and stakeholders

health insurance, scientific associations, patient associations, national palliative care scientific associations, territorial health entities

Boards

Meetings

Conferences,

Diplomacy

Capacity Building

To train and educate the TCY program team in PPC

Postgraduate education:

-Universidad Internacional de La Rioja

Continued education:

-Harvard Medical School courses

Master’s degree

Palliative care education and practice course

Multidisciplinary Team

To organize a multidisciplinary team in PPC that guarantees a comprehensive and holistic approach for the patient and their family needs

FVL

Inclusion of different healthcare workers including a psychologist, social worker, nurse, and spiritual counselor

Specialized Pediatric Team Leader

To guarantee a comprehensive approach to the pediatric medical conditions in PC

FVL, Pediatrician leader, Department of Palliative Care

A physician with specific training in pediatrics and PPC

Research

To create an information system that characterizes the population and identifies clinical, economic, and social problems that may contribute to solving scientific gaps and support multilevel decision-making.

FVL

PPC research group

Support of research assistant

  1. BMTU Bone Marrow Transplant Unit, HCW Healthcare Workers, PPC Pediatric Palliative Care, CCU Children Cancer Units, PICU Pediatric Intensive Care Unit, NICU Neonatal Intensive Care Unit, TCY “Taking Care of You”, FVL Fundacion Valle del Lili