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Table 2 Item frequencies & means (N = 193)

From: Patient-centered care during the last year of life: adaptation and validation of the German PACIC short form for bereaved persons as proxies (PACIC-S9-proxy)

Item

What was your relative’s experience of the care they received for their chronic illness during the last year of life?

almost never

n (%)

generally not

n (%)

sometimes

n (%)

most of the time

n (%)

almost always

n (%)

unable to rate

n (%)

Missing

n (%)

Mean ratinga

SD

1

… were they given choices about treatment to think about.

47 (24.35)

26 (13.47)

27 (13.99)

29 (15.03)

40 (20.73)

20 (10.36)

4 (2.07)

2.94

1.45

2

… were they satisfied that their care was well organized.

10 (5.18)

25 (12.95)

14 (7.25)

75 (38.86)

63 (32.64)

6 (3.11)

 

3.83

1.17

3

… were they given a copy of their treatment plan.

30 (15.54)

12 (6.22)

7 (3.63)

22 (11.40)

113 (58.55)

9 (4.66)

 

3.96

1.51

4

… were they encouraged to get to a specific group or class to help them cope with their chronic condition.

101 (52.33)

11 (5.70)

11 (5.70)

7 (3.63)

13 (6.74)

47 (24.35)

3 (1.55)

1.74

1.14

5

… were they helped to make a treatment plan that they could carry out in their daily life.

70 (36.34)

13 (6.74)

11 (5.70)

20 (10.36)

38 (19.7)

39 (20.21)

2 (1.04)

2.63

1.52

6

… were they helped to plan ahead so they could take care of their condition even during hard times.

74 (38.3)

18 (9.33)

11 (5.70)

19 (9.84)

35 (18.13)

34 (17.62)

2 (1.04)

2.51

1.51

7

… were they asked how much their chronic disease affected their life.

51 (26.42)

19 (9.84)

32 (16.58)

27 (13.99)

39 (20.21)

25 (12.95)

 

2.91

1.45

8

… were they contacted after a visit to see how things were going.

77 (39.90)

28 (14.50)

29 (15.0)

16 (8.3)

30 (15.5)

10 (5.2)

3 (1.55)

2.41

1.46

9

… were they told how much visits with other types of doctors, like an eye doctor or surgeon, helped their treatment.

50 (25.91)

13 (6.74)

20 (10.36)

25 (12.95)

62 (32.12)

21 (10.88)

2 (1.04)

3.21

1.58

  

not at all satisfied

n (%)

generally not satisfied

n (%)

moderately satisfied

n (%)

rather satisfied

n (%)

completely satisfied

n (%)

unable to rate

n (%)

Missing

n (%)

Mean rating

SD

10

Overall, how satisfied was the decedent with the medical care received?

15 (7.77)

22 (11.40)

41 (21.24)

65 (33.68)

41 (21.24)

8 (4.15)

1 (0.52)

3.52

1.20

  1. aKey for of answer categories: almost never = 1, generally not = 2, sometimes = 3, most of the time = 4, almost always = 5