Item What was your relative’s experience of the care they received for their chronic illness during the last year of life? | almost never n (%) | generally not n (%) | sometimes n (%) | most of the time n (%) | almost always n (%) | unable to rate n (%) | Missing n (%) | Mean ratinga | SD | |
---|---|---|---|---|---|---|---|---|---|---|
1 | … were they given choices about treatment to think about. | 47 (24.35) | 26 (13.47) | 27 (13.99) | 29 (15.03) | 40 (20.73) | 20 (10.36) | 4 (2.07) | 2.94 | 1.45 |
2 | … were they satisfied that their care was well organized. | 10 (5.18) | 25 (12.95) | 14 (7.25) | 75 (38.86) | 63 (32.64) | 6 (3.11) | 3.83 | 1.17 | |
3 | … were they given a copy of their treatment plan. | 30 (15.54) | 12 (6.22) | 7 (3.63) | 22 (11.40) | 113 (58.55) | 9 (4.66) | 3.96 | 1.51 | |
4 | … were they encouraged to get to a specific group or class to help them cope with their chronic condition. | 101 (52.33) | 11 (5.70) | 11 (5.70) | 7 (3.63) | 13 (6.74) | 47 (24.35) | 3 (1.55) | 1.74 | 1.14 |
5 | … were they helped to make a treatment plan that they could carry out in their daily life. | 70 (36.34) | 13 (6.74) | 11 (5.70) | 20 (10.36) | 38 (19.7) | 39 (20.21) | 2 (1.04) | 2.63 | 1.52 |
6 | … were they helped to plan ahead so they could take care of their condition even during hard times. | 74 (38.3) | 18 (9.33) | 11 (5.70) | 19 (9.84) | 35 (18.13) | 34 (17.62) | 2 (1.04) | 2.51 | 1.51 |
7 | … were they asked how much their chronic disease affected their life. | 51 (26.42) | 19 (9.84) | 32 (16.58) | 27 (13.99) | 39 (20.21) | 25 (12.95) | 2.91 | 1.45 | |
8 | … were they contacted after a visit to see how things were going. | 77 (39.90) | 28 (14.50) | 29 (15.0) | 16 (8.3) | 30 (15.5) | 10 (5.2) | 3 (1.55) | 2.41 | 1.46 |
9 | … were they told how much visits with other types of doctors, like an eye doctor or surgeon, helped their treatment. | 50 (25.91) | 13 (6.74) | 20 (10.36) | 25 (12.95) | 62 (32.12) | 21 (10.88) | 2 (1.04) | 3.21 | 1.58 |
not at all satisfied n (%) | generally not satisfied n (%) | moderately satisfied n (%) | rather satisfied n (%) | completely satisfied n (%) | unable to rate n (%) | Missing n (%) | Mean rating | SD | ||
10 | Overall, how satisfied was the decedent with the medical care received? | 15 (7.77) | 22 (11.40) | 41 (21.24) | 65 (33.68) | 41 (21.24) | 8 (4.15) | 1 (0.52) | 3.52 | 1.20 |