Table 1 Demographic details of the participants
Demographics | Participants |
|---|---|
Female (n, %) | 8 (67%) |
Age in years (mean, range) | 52 (27 to 80) |
Married or living with partner (n, %) | 8 (67%) |
Number of children (mean, range) | 2.3 (0 to 6) |
Health care use (n, %) | |
Outpatient clinic | 7 (58%) |
Day care and outpatient clinic | 3 (25%) |
Assisted living facility and outpatient clinic | 1 (8%) |
Nursing home (without outpatient clinic) | 1 (8%) |
Familiar with HD before they were diagnosed (n, %) | 8 (67%) |
Chose to undergo predictive genetic testing (n, %) | 4 (50%) |
Time since predictive genetic testing (according to patient) in years (mean, range) | 14 (10 to 25) |
Diagnosed with HD (according to patient) (n, %) | 11 (92%) |
Time since diagnosis (according to patient) in years (mean, range) | 5.4 (0.2 to 15) |