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Table 1 Characteristics of identified studies on measurement of Quality of Care

From: Measuring the quality of care in nursing home residents with early-onset neurodegenerative diseases: a scoping review

Author

Year

Research topic

Target group

Settings

Methods of data collection and participants

Focus groups

Interviews

Surveys

Other methods

Wilson et al.

2011

Discussions with health care staff about providing palliative and end-of-life care.

MS, PD, MND, HD

Neurological care centers, Hospice

Health care staff (n = 77)

Health care staff (n = 3)

  

Van Rumund et al.

2014

Quality of PD care in Dutch nursing homes from the perspectives of residents, informal caregivers, and professionals.

PD

Nursing homes

Health care staff (n = 35)

Residents (n = 15), Informal caregivers (n = 15)

  

Sandsdalen et al.

2016

Patients’ perceptions on the quality of palliative care in and across different care settings.

Among others MS, ALS, PD

Palliative units in nursing homes

  

Survey of nursing home residents (n = 8)*

 

Armitage et al.

2009

Residents/ relatives’ perspective on the quality of care provision.

PD

Care homes

 

Relatives (n = 51), Patients (n = 24)

  

Dellefield et al.

2011

Nursing and interdisciplinary lessons learned in providing care.

HD

Skilled nursing facility

   

Description of care provision (n = 53)

  1. Extraction of the results. MS Multiple Sclerosis, PD Parkinson’s Disease, MND Motor Neuron Disease, HD Huntington’s Disease, ALS Amyotrophic Lateral Sclerosis. * Maximum of 8 patients, exact number not specified further