From: Using a self-directed workbook to support advance care planning with long term care home residents
 | Ranked Questions | N (%) |
---|---|---|
Decision-Making | As a patient I’d like to know ___ about my condition and treatment. |  |
   The basics | 6 (14%) | |
   Mixed preferences | 3 (7%) | |
   The details | 33 (75%) | |
If I had a terminal illness, I would prefer to ___. | Â | |
   Not know how quickly it is progressing | 16 (36%) | |
   Mixed preferences | 4 (9%) | |
   Know my doctor’s best estimation for how long I have to live | 23 (52%) | |
As I receive care, I would like ___. | Â | |
   My health care team to do what they think is best | 8 (18%) | |
   Mixed preferences | 3 (7%) | |
   To have a say in every health care decision | 31 (70%) | |
Family/Friend Involvement | How involved do you want your loved ones to be? | Â |
   Do exactly what I’ve said, even if it makes them uncomfortable | 21 (48%) | |
   Mixed preferences | 9 (20%) | |
   Do what brings them peace, even if it goes against what I’ve said | 10 (23%) | |
When it comes to your privacy [at death], ___. | Â | |
   When the time comes, I want to be alone | 7 (16%) | |
   Mixed preferences | 8 (18%) | |
   I want to be surrounded by my loved ones | 25 (57%) | |
When it comes to sharing information about my illness with others, ___. | Â | |
   I don’t want my loved ones to know everything | 4 (9%) | |
   Mixed preferences | 5 (11%) | |
   I am comfortable with loved ones knowing everything | 32 (73%) | |
Treatment Care | How much medical treatment do you want to try? | Â |
   Every treatment available, no matter how uncomfortable I become | 9 (20%) | |
   Mixed preferences | 8 (18%) | |
   Quality of life is more important to me than quantity | 24 (55%) | |
What are your concerns about medical treatments? | Â | |
   I worry that I won’t get enough care | 9 (20%) | |
   Mixed concerns | 29 (66%) | |
   I worry that I’ll get too much care | 3 (7%) | |
What are your preferences about where you want to be? | Â | |
   I want to spend my last days in a health care facility | 14 (32%) | |
   Mixed preferences | 5 (11%) | |
   I want to spend my last days at home | 21 (48%) |