Table 1 Demographics of included participants
From: End of life care in UK care homes during the COVID-19 pandemic: a qualitative study
|  | Family carers baseline (n = 26) | Family carers follow up (n = 11) | Care home staff baseline (n = 16) | Care home staff follow up (n = 9) | Total sample (n = 42) |
|---|---|---|---|---|---|
N (%) | N (%) | N (%) | N (%) | N (%) | |
Gender | |||||
 Female | 18 (69.2%) | 8 (72.7%) | 13 (81.3%) | 8 (88.9%) | 31 (73.8%) |
 Male | 8 (30.8%) | 3 (27.3%) | 3 (18.8%) | 1 (11.1%) | 11 (26.3%) |
Ethnicity | |||||
 White British | 22 (84.6%) | 10 (90.9%) | 13 (81.3%) | 7 (77.8%) | 35 (56.5%) |
 White Other | 2 (7.7%) | 1 (9.1%) | 1 (6.3%) | 1 (11.1%) | 3 (4.8%) |
 BAME | 2 (7.7%) | 0 | 1 (6.3%) | 0 | 3 (4.8%) |
 Prefer not to say | 0 | 0 | 1 (6.3%) | 1 (11.1%) | 1 (1.6%) |
Relationship with PLWD |  |  | – | – | – |
 Spouse | 9 (34.6%) | 3 (27.3%) |  |  |  |
 Partner | 1 (3.8%) | 0 |  |  |  |
 Adult child | 16 (61.5) | 8 (72.7%) |  |  |  |
Dementia subtype |  |  | – | – | – |
 Alzheimer’s disease | 8 (30.8%) | 4 (36.4%0 |  |  |  |
 Mixed dementia | 2 (7.7%) | 0 |  |  |  |
 Vascular dementia | 4 (15.4%) | 2 (18.2%) |  |  |  |
 Lewy Body dementia | 6 (23.1%) | 4 (36.4%) |  |  |  |
 Other | 2 (7.7%) | 1 (9.1%) |  |  |  |
 Unknown | 4 (15.4%) | 0 |  |  |  |
IMD Quintileb | |||||
 1 (least disadvantaged) | 11 (42.3%) | 6 (66.7%) | 3 (23.1%) | 2 (28.6%) | 14 (43.8%) |
 2 | 4 (14.5%) | 2 (22.2%) | 3 (23.1%) | 2 (28.6%) | 2 (21.9%) |
 3 | 0 | 0 | 3 (23.1%) | 2 (28.6%) | 3 (9.4%) |
 4 | 3 (11.5%) | 0 | 1 (7.7%) | 0 | 4 (12.5%) |
 5 (most disadvantaged) | 1 (3.8%) | 1 (11.1%) | 3 (23.1%) | 1 (14.3%) | 4 (12.5%) |
Job role | – | – |  |  | – |
 Activity Coordinator |  |  | 1 (6.3%) | 0 |  |
 Care home liaison |  |  | 1 (6.3%) | 1 (11.1%) |  |
 Care quality |  |  | 1 (6.3%) | 0 |  |
 Care assistant |  |  | 4 (25.0%) | 3 (33.3%) |  |
 Senior care assistant |  |  | 2 (12.5) | 0 |  |
 Night care assistant |  |  | 1 (6.3%) | 1 (11.1%) |  |
 Housekeeper |  |  | 1 (6.3%) | 1 (11.1%) |  |
 Matron |  |  | 1 (6.3%) | 0 |  |
 Manager |  |  | 4 (25.0%) | 3 (33.3%) |  |
| Â | Mean (SD), [Range] | ||||
Agea | 62.3 (±9.5) [42-89] | 61.1 (±5.2) [51-68] | 41.8 (±16.6) [18-62] | 43.3 (±17.2) [21-60] | 54.8 (±15.9) [18-89] |
Years of education | 17.9 (±2.9) [11-23] | 18.09 (±1.5) [16-20] | 15.7 (±2.7) [11-20] | 16.4 (±2.6) [11-19] | 17.1 (±3.0) [11-23] |
Care home capacity | 41.5 (±17.4) [18-76] | 38.9 (±18.2) [18-76] | 42.2 (±15.8) [12-64] | 49.7 (±11.6) [36-64] | 41.7 (±16.6) [12-76] |
Years working in a care home | – | – | 9.3 (±10.6) [1-35] | 7.0 (±11.1) [1-35] | – |
Years since dementia diagnosis | 6.7 (±3.6) [2-16] | 7.0 (±4.4) [2-16] | – | – | – |
Years (PLWD) residing in a care home | 2.7 (±2.1) [1-10] | 2.8 (±1.9) [1-7] | – | – | – |