Table 2 Themes and subthemes following thematic analysis

1. Wasting or losing time

• Fear of losing touch

• Breaking visiting promises, and feeling abandoned in the final days of life

2. Maintaining control, plans and routine

• Disrupted care plans and loss of control/autonomy

• Exceptional visiting abilities or contact with residents

• The key role of care workers, and the importance of good communication

3. Coping with loss, and a lack of support

• Lack of support for families during EoL care

• Lack of support offered to those left behind