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Table 1 Eligibility criteria for including papers in review

From: How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review

 

Inclusion Criteria

Exclusion Criteria

Population

• Patients with any advanced, incurable, life-span limiting condition or disease

- Can include multi-morbidity (so long as at least one condition is advanced)

- Can include ‘serious illnesses’ that have led to palliative care consultation

• Proxy discussions of any ‘real patients’ (e.g., by a relative/carer or healthcare professional) where the patient otherwise meets the inclusion criteria

• (For RQ2) Any healthcare professional (e.g., consultant, doctor, nursing staff)

• Any self-defined ethnicity

• Adults >  = 18-years-old

• Patients with non-advanced/non-lifespan-limiting conditions only

• The above includes ‘nursing home’ and ‘community dwelling older adult’ populations where no advanced disease is reported

• Patients with curable disease

• Children/paediatric patients under 18-years-old

• Members of the general public with no advanced disease

Comparison

• Either:

- Contains a comparison between two or more groups based on ethnicity/race

- RQ2: If focussing on a single group, contains a substantive focus or analysis of cultural, ethnic or racial factors

• Focus on only a single group with no analysis of cultural/ethnic factors

Outcome Measures

• RQ1: Any exploration/discussion of uptake of advance care planning (i.e., qualitative, or quantitative)

• RQ2: Any exploration/discussion of patient or clinician factors affecting advance care plan uptake (likely qualitative but include quantitative)

• No exploration or discussion of either:

- Uptake of advance care planning

- Factors affecting uptake of advance care planning

Study Design & Setting

• Any qualitative or quantitative study design (including case reports where ethnicity is discussed)

• Any location of healthcare (including but not limited to hospice, hospital, community, home care)

• Year of publication 2000 – 2022

• English language publication

• Data from any country

• Papers with no new empirical data or new analyses (including systematic reviews, editorials, and commentaries)

• Case reports with no reference to ethnicity

• Published before year 2000

• Non-English language publication

• Autopsy, wet-lab and animal studies