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Table 4 Emotions expressed by parents regarding their child’s situation

From: Children with palliative care needs in Papua New Guinea, and perspectives from their parents and health care workers: a qualitative study

Description from parents or guardians

Emotion

Number (%)

- “me worry”, “pilim hevi”, “upset”, “bagarap”, “tingting planti”, “mi cry”, “not happy”, “mind na lewa blo me hangamap” (I am worried; I feel burdened; I am upset; I feel terrible; I am anxious; I cry; I am not happy; My mind and heart are hanging)

- “mi lukautim em go na me die now, em me worry lo disla” (I am caring for her now but I am worried about her care after I die)

Sad, anxious or depressed

8 (57%)

- “em ba orait, me wanbel” (He will be okay, I am at peace)

- “it’s unexpected but we accept it”

At peace with the diagnosis

2 (14%)

- “ mi fret” (I am scared)

Scared

1 (7%)

- “em mas wrong blo mipla ol parents” (It must be our fault as parents, we must have done something wrong)

- “maybe mama blo em no kisim banis sut” (Maybe her mother was not vaccinated)

Guilt and blame

2 (14%)

- “mi faul. How em kisim disla sik?” (I am confused as to how he got this illness)

Confused

1 (7%)