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Table 2 Proxy assessments of SPC teams (N = 142) and family caregivers (N = 60): POS items

From: Specialist palliative care until the very end of life - reports of family caregivers and the multiprofessional team

POS itema

Over the last three days of the patient’s life:

 

0

(% rated as least affected)

1

(%)

2

(%)

3

(%)

4

(% rated as most affected)

1

Pain

SPC Team

27.5

17.6

27.5

23.2

4.2

Family caregivers

21.1

15.8

26.3

35.1

1.8

2

Other symptoms

SPC Team

9.9

24.1

27.0

32.6

6.4

Family caregivers

17.5

22.8

17.5

24.6

17.5

3

Patient anxiety

SPC Team

28.3

19.6

15.9

28.3

8.0

Family caregivers

21.1

29.8

21.1

17.5

10.5

4

Family anxiety

SPC Team

8.7

25.4

13.0

21.7

31.2

Family caregivers

3.4

11.9

5.1

28.8

50.8

5

Information

SPC Team

83.7

14.2

0.0

0.7

1.4

Family caregivers

47.3

29.1

14.5

5.5

3.6

6

Support

SPC Team

52.6

15.6

11.1

8.9

11.9

Family caregivers

31.0

15.5

8.6

13.8

31.0

7

Life worthwhile

SPC Team

17.0

20.7

20.0

16.3

25.9

Family caregivers

29.3

15.5

12.1

8.6

34.5

8

Self-worth

SPC Team

18.3

31.3

13.7

17.6

19.1

Family caregivers

15.8

29.8

15.8

8.8

29.8

9

Wasted time

SPC Team

99.3

n.a.

0.7

n.a.

0.0

Family caregivers

87.3

n.a.

7.3

n.a.

5.5

10

Personal affairs

SPC Team

73.0

n.a.

19.0

n.a.

7.9

Family caregivers

66.1

n.a.

23.2

n.a.

10.7

  1. a Questions 1 to 8: range 0 (no problems) to 4 (overwhelming problems), questions 9 and 10: scores of 0, 2, or 4 (higher scores indicate more problems)
  2. Abbreviations: POS, Palliative Care Outcome Scale; SPC, specialist palliative care; n.a., not applicable