Table 1 Characteristics of the family caregivers (N = 12), their children (N = 10) and treating specialists (N = 17)
Characteristic | Number (N) | Percentage (%) |
|---|---|---|
Family caregivers | Â | Â |
Gender | Â | Â |
Male | 4 | 33 |
Female | 8 | 66 |
Age (years) | Â | Â |
30–40 | 6 | 50 |
over 40 | 5 | 42 |
Unknown | 1 | 8 |
Marital stage | Â | Â |
married/cohabiting | 9 | 75 |
divorced/not cohabiting | 3 | 25 |
Interval between the initial consultation and interview with the researcher | Â | Â |
3–6 months | 5 | 42 |
7–12 months | 5 | 42 |
13–18 months | 1 | 8 |
19–24 months | 1 | 8 |
Pediatric patients | Â | Â |
Age of the child (at the interview) (years) | Â | Â |
0–1 | 4 | 40 |
2–5 | 2 | 20 |
6–12 | 3 | 30 |
over 12 | 1 | 10 |
Gender of the child | Â | Â |
Male | 6 | 60 |
Female | 4 | 40 |
Diagnoses | Â | Â |
Non-malignant disease (total) | 5 | 50 |
Epileptic encephalopathy | 1 | 10 |
Congenital anomalies | 3 | 30 |
Cardiovascular disorder | 1 | 10 |
Malignant disease (total) | 5 | 50 |
Bone/soft tissue sarcoma | 2 | 20 |
Neuroblastoma | 2 | 20 |
Leukemia | 1 | 10 |
Subspecialty of treating specialists | Â | Â |
Pediatric oncology | 14 | 82 |
Pediatric cardiology | 1 | 6 |
Pediatric nephrology | 1 | 6 |
Pediatric neurology | 1 | 6 |