Table 4 TfSL category, diagnosis groups, and phenomena reported
TfSL categories | Conditions | N of studies | Phenomena reported in the identified PROMs |
|---|---|---|---|
1) Life-threatening conditions for which curative treatment may be feasible but can fail | Cancer; Organ failure | 70 | Adverse events; benefit; combination of multiple phenomena; comfort; depression, fatigue; distress; general health; HRQL; QOL; pain; psychological stress; PTSD; resilience; sickness; and various symptoms |
2) Conditions for which premature death is inevitable. Treatment may aim at prolonging life and allowing normal activities | Primary ciliary dyskinesia; HIV/AIDS | 2 | PCD-HRQL; HRQL; nasal-related HRQL; disease-specific QOL; QOL |
3) Progressive conditions without curative treatment options. Treatment exclusively palliative and may extend over many years | Neurologic progressive disease | 3 | Fatigue; HRQL; neuromuscular HRQL; pain |
4) Irreversible but nonprogressive conditions causing severe disabilities leading to susceptibility to health complications and likelihood of premature death | 0 | ||
A combination of categories | Various | 23 | Anxiety; distress; health status; HRQL; nausea; pain; palliative outcomes; QOL; suffering symptoms |