From: The expression of ultimate life goals in co-creative art processes with palliative cancer patients
Patient | 1. Art communications | 2. Element compilation | 3. Consolidation | 4. Reflection | ||
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1.1 Art communications – exploring through the senses | 1.2 Art communications - tracing different aspects | 2.1 Element compilation – broad arrangement | 2.2 Element compilation – acuminating | |||
1 | 1. Reading the story ‘Farewell from Phoebe’a 2. Images 3. Withered flowers 4. Roses 5. Fabrics | 1. Reflecting upon her inability to have children 2. Little girl with her parents 3. Transient nature of her body 4. God’s guidance 5. A dress that her mother once made | Making and subsequently photographing the flower collage which was arranged in the shape of a uterus | Looking for the most fitting arrangement of the projected photoprint to fit a blanket | 1. The blanket 2. Photographing her as she was sleeping under the blanket 3. A poem she had written | “This blanket is a warm wrapping of love, a safe consisting of my feelings. I am able to say: let go and let God” (i.e. ’I surrender to God’s plan’) |
2 | 1. Used bandages 2. Wool fabrics 3. Stones and shells 4. A piece of the Djoser pyramid | 1. Bandages were collected during the chemotherapy treatment 2. She always loved knitting 3. Collecting pieces of the earth she once inhabited 4. Working in Egypt | Knitting a turquoise scarf Using a 3D pen to create a coral necklace | Adding stones and shells to knitted wool and creating a nautilus shape with dyed ribbons of bandage. | Connecting the remaining coloured bandage while making a necklace | “This work shows a sense of gratefulness in the additional time that was granted to me. The chosen colours represent the aura of a person leaving this world.” |
3 | 1. Creating curved shapes using clay 2. Drawing of the body consisting of a cut out liver 3 .The colours yellow and red | 1. “This is a protective female snake.” 2. “The liver represents my anger and fear and I don’t want that.” 3.”Red and yellow represent passion.” | Arranging 5 curved leaves, where the centre represents graceful femininity. And the other leaves represent protection and connection | Strengthening the leaves by pins, and using hydrochloric acid to create yellow-red corrosion | Finding the right supporting base for the leaves to stand on | “The work expresses the pain of the illness experience, I feel like a phoenix that arises from that pain. The connection and protection from my loved ones is represented in the leaves around me.” |
4 | 1. Reading and rewriting the story of Orpheusa | 1. Identification with Euridice and Orpheus as her husband, both trying to negotiate with Hades to prevent her from dying before she is ready | Going on a hike in nature to find elements representing the natural course of life and death | Creating a hiking map and formulating instructive sentences to accompany the map | Dividing the map in three parts, accompanied by distinct piano and chime music, leading the hiker to a deeper experience of stillness | “The presence of the stillness in nature helps me to see the mortality in nature as a known fact representing my own mortality.” |
5 | 1. Drawing a Rich Picture of a road with heavy storm, a burning bush, and light at the end of the road 2. Experimenting with electrical guitar and sounds of thunder | 1. “The heavy storm is the cancer on my path in life.” 2. “The guitar music is melancholic suffering, but it is not allowed to take over.” | Creating a film showing a scenic motorbike route accompanied by melancholic guitar music | Letters of thanks to friends are being added, as a symbol of gratitude for their support | The film of his life’s journey is being placed on a website. The music is being printed on a long playing vinyl record and the drawing is used as artwork on the album cover | “The motorbike is passing the cancer on the road, and with the support of others the journey is continued to its end. There is bright light at the horizon.” |
6 | 1. Talking about multiple technical elements of the construction of a seraphine | 1. Creating and playing music on seraphines has been a vital element throughout his life and connects to many memories | Compiling several romantic pieces of seraphine music and explaining how he feels while listening and playing those musical pieces | Filming in the church where he plays the seraphine almost daily | A film of his hands as he plays the seraphine, accompanied by delayed seraphine music. A photo still of his hands as he plays seraphine | “This film and photo are an impression of me. They reflect playing in the church and also the moments that I feel melancholic about living without my wife.” |
7 | 1. Reading the story of Orpheusª and listening to music inspired by the story 2. The colour white while painting an egg 3. Sensing bird feathers | 1. “I am going to try to retrieve Euridice: she represents my tenderness that has been neglected for years.” 2. The year’s cycle 3. The inner tenderness-being able to transcend above everything worldly | Felting a woollen garment in the shape of an egg | Embroidering feathers and braided horsehair into the garment | Selecting pictures reflecting the creation process of the garment and making a booklet | “The wool felt garment represents an attitude of tenderness and of finding a wider perspective in welcoming life as it is. Understanding why things had to happen in a certain way.” |
8 | 1. Reflecting upon portraits during a Renaissance exposition 2. Exploring the use of colours in pictures of nature | 1. “I am not really aware of status sensitivity, but I dress myself according to my identity as a manager: grey colours.” 2. “These are places that I once visited and I was astonished by their beauty.” | 1. Posing in different standing positions for the artist to make drawings of her 2. Formulating words that represent her inner experience of her identity | Colouring-in different drawings of the poses | Colouring-in a drawing of herself being posed as a confident woman, using very bright colours. Installing a picture of this portrait as profile picture on social media | “This full body portrait with passionate bright colours is a statement towards the world, where I am showing this self-expression.” |
9 | 1. The story of the ‘Ant’s departure’ª is an inspiration to draw an ant. 2. Exploring art works in books by Morandi and Katharina Grosse | 1. “The ant is caring and pays close attention to her surroundings. Her eyes radiate love- this is how I have been, but I am also afraid of people.” 2. Purple represents love, green represents nature and yellow represents divine trust | Drawing the theme ‘connection’ which is represented by two globes touching each other | An attempt to draw a pile of books, elements of a kitchen apron, several pots and pans and animals, including her dog, as she is practicing with drawing techniques to refine the pictures | Drawing the aforementioned elements again (books, pots and pans, kitchen apron, husband and dog) | “All important aspects of life are represented in drawings consisting of multiple elements. The connection to others is made visible.” |
10 | 1. The story of the ‘The Metamorphosis’a 2. Selecting pictures for a collage 3. Sensing fabrics 4. Plastering a mould of her hands | 1. “The last sentence in the story touched me: ‘I could also ask for help’.” 2. The pictures remind her of her childhood 3. The fabrics bring up tenderness and resistance simultaneously 4. The hands represent giving and receiving | Creating a collage of pictures and fabrics that represent important elements in her life. Plastering another mould of her hands | Tearing apart all her diaries and making paper-mache out of the pieces | Creating a paper-mache bridge constructed of paper from shredded dairies, representing her spiritual transition from earthly life to the afterlife | “The bridge is being constructed out of my life stories. It is a cross over and meant for the transition to the afterlife, guided by those that are deeply connected to me.” |