Table 3 Distribution of Responses on the PPCAS
From: Chinese and Belgian pediatricians’ perspectives toward pediatric palliative care: an online survey
PPCAS item (α = 0.83) | Mainland China (n = 325) | Flanders (n = 115) | All (n = 440) | ||||||
|---|---|---|---|---|---|---|---|---|---|
Strongly/ Somewhat Disagree, n (%) | Strongly/ Somewhat Agree, n (%) | Unsure, n (%) | Strongly/ Somewhat Disagree, n (%) | Strongly/ Somewhat Agree, n (%) | Unsure, n (%) | Strongly/ Somewhat Disagree, n (%) | Strongly/ Somewhat Agree, n (%) | Unsure, n (%) | |
1. Palliative care is as important as curative care in the pediatric environment | 21 (6.5) | 277 (85.2) | 27 (8.3) | 6 (5.2) | 109 (94.8) | 0 (0) | 27 (6.1) | 386 (87.7) | 27 (6.1) |
2. I have had experience of providing palliative care to dying children and their families | 136 (41.8) | 125 (38.5) | 64 (19.7) | 35 (30.4) | 79 (68.7) | 1 (0.9) | 171 (38.9) | 204 (46.4) | 65 (14.8) |
3. I feel a sense of personal failure when a child dies | 27 (8.3) | 288 (88.7) | 10 (3.1) | 74 (64.3) | 38 (33.0) | 3 (2.6) | 101 (23.0) | 326 (74.1) | 13 (3.0) |
4. There is support for pediatric palliative care in society | 30 (9.2) | 263 (80.9) | 32 (9.8) | 30 (26.1) | 80 (69.6) | 5 (4.3) | 60 (13.6) | 343 (78.0) | 37 (8.4) |
5. The medical staff supports palliative care for dying children in my work setting | 52 (16.0) | 215 (66.2) | 58 (17.8) | 19 (16.5) | 89 (77.4) | 7 (6.1) | 71 (16.1) | 304 (69.1) | 65 (14.8) |
6. The physical environment of my work setting is ideal for providing palliative care to dying children | 142 (43.7) | 113 (34.8) | 70 (21.5) | 69 (60.0) | 45 (39.1) | 1 (0.9) | 211 (48.0) | 158 (35.9) | 71 (16.1) |
7. My work setting is adequately staffed for providing the needs of dying children requiring palliative care and their families | 170 (52.3) | 102 (31.4) | 53 (16.3) | 74 (64.3) | 40 (34.8) | 1 (0.9) | 244 (55.5) | 142 (32.3) | 54 (12.3) |
8. In my work setting, parents are involved in decisions about their dying child | 53 (16.3) | 226 (69.5) | 46 (14.2) | 7 (6.1) | 94 (81.7) | 14 (12.2) | 60 (13.6) | 320 (72.7) | 60 (13.6) |
9. My previous experiences of providing palliative care to dying children have been rewarding | 132 (40.6) | 103 (31.7) | 90 (27.7) | 14 (12.2) | 81 (70.4) | 20 (17.4) | 146 (33.2) | 184 (41.8) | 110 (25.0) |
10. When children are dying in my work setting, providing pain relief is a priority for me | 132 (40.6) | 103 (31.7) | 90 (27.7) | 0 (0) | 108 (93.9) | 7 (6.1) | 132 (30.0) | 211 (48.0) | 97 (22.0) |
11. I am often exposed to death in the pediatric environment | 192 (59.1) | 122 (37.5) | 11 (3.4) | 86 (74.8) | 29 (25.2) | 0 (0) | 278 (63.2) | 151 (34.3) | 11 (2.5) |
12. Palliative care is necessary in pediatric education | 2 (0.6) | 306 (94.2) | 17 (5.2) | 1 (0.9) | 108 (93.9) | 6 (5.2) | 3 (0.7) | 414 (94.1) | 23 (5.2) |
13. When a child dies in my work setting, I have sufficient time to spend with the family | 224 (68.9) | 67 (20.6) | 34 (10.5) | 42 (36.5) | 67 (58.3) | 6 (5.2) | 266 (60.4) | 134 (30.4) | 40 (9.1) |
14. There are policies/guidelines to assist in the delivery of palliative care in my work setting | 202 (62.2) | 58 (17.8) | 65 (20.0) | 57 (49.6) | 50 (43.4) | 8 (7.0) | 259 (58.9) | 108 (24.5) | 73 (16.6) |
15. In my work setting, when a diagnosis with a likely poor outcome is made, parents are informed of palliative care options | 154 (47.4) | 119 (36.6) | 52 (16.0) | 18 (15.7) | 82 (71.3) | 15 (13.0) | 172 (39.1) | 201 (45.7) | 67 (15.2) |
16. In my work setting, the team expresses its opinions, values, and beliefs about providing care to dying children | 153 (47.1) | 109 (33.5) | 63 (19.4) | 17 (14.8) | 88 (76.5) | 10 (8.7) | 170 (38.6) | 197 (44.8) | 73 (16.6) |
17. Caring for dying children is traumatic for me | 97 (29.8) | 183 (56.3) | 45 (13.8) | 70 (60.9) | 41 (35.7) | 4 (3.5) | 167 (38.0) | 224 (50.9) | 49 (11.1) |
18. I have received in-service education that assists me to support and communicate with parents of dying children | 184 (56.6) | 93 (28.6) | 48 (14.8) | 85 (73.9) | 29 (25.2) | 1 (0.9) | 269 (61.1) | 122 (27.7) | 49 (11.1) |
19. All members of the healthcare team in my work setting agree with and support palliative care when it is implemented for a dying child | 184 (56.6) | 93 (28.6) | 48 (14.8) | 9 (7.8) | 91 (79.1) | 15 (13.0) | 193 (43.9) | 184 (41.8) | 63 (14.3) |
20. In my work setting, the staff go beyond what they feel comfortable with in using technological life support | 72 (22.2) | 209 (64.3) | 44 (13.5) | 72 (62.6) | 22 (19.1) | 21 (18.3) | 144 (32.7) | 231 (52.5) | 65 (14.8) |
21. In my work setting, staff are asked by parents to continue life-extending care beyond what they feel is right | 20 (6.2) | 289 (88.9) | 16 (4.9) | 53 (46.1) | 44 (38.3) | 18 (15.7) | 73 (16.6) | 333 (75.7) | 34 (7.7) |
22. My personal attitude about death affects my willingness to deliver palliative care | 94 (28.9) | 187 (57.5) | 44 (13.5) | 75 (65.2) | 33 (28.7) | 7 (6.1) | 169 (38.4) | 220 (50.0) | 51 (11.6) |
23. Palliative care is against the values of pediatric medicine | 252 (77.5) | 35 (10.8) | 38 (11.7) | 111 (96.5) | 4 (3.5) | 0 (0) | 363 (82.5) | 39 (8.9) | 38 (8.6) |
24. When a child dies in my work setting, counselling is available if I need it | 45 (13.8) | 245 (75.4) | 35 (10.8) | 24 (20.9) | 73 (63.5) | 18 (15.7) | 69 (15.7) | 318 (72.3) | 53 (12.0) |
25. There is a belief in society that children should not die, under any circumstances | 166 (51.1) | 129 (39.7) | 30 (9.2) | 59 (51.3) | 53 (46.1) | 3 (2.6) | 225 (51.1) | 182 (41.4) | 33 (7.5) |
26. Curative care is more important than palliative care in the pediatric intensive care environment | 107 (32.9) | 185 (56.9) | 33 (10.2) | 71 (61.7) | 37 (32.2) | 7 (6.1) | 178 (40.5) | 222 (50.5) | 40 (9.1) |